Dr. Stewart Visit and Our Progress

Well we saw Dr. Kendall Stewart in Austin TX on Monday. Our tests on our hearing and hearing reflexes were mixed. No Reflexes in our left ear this time but he said that is normal as they will fluctuate until we are Better. Our OAE test was awesome it was much more normal than ever before!!! So we know that Jonathan is hearing us better and his nervous system is able to receive the data and process it. We have always had trouble processing auditory input.

We also didn't have to hold Jonathan down so that they could do the tests this time. He was so calm and just sat there with the test things in his ears!!!! I can't express enough how big a deal this is for us. In the past we have had trouble getting the testing done because of how much Jonathan would fight and move. This time his dad held his hands and he didn't even fight to have him let go. I usually hold his head still which takes 2 hands and lots of strength to keep him form shaking the probes out. This time all I did was stroke his cheek and head and he just sat there!!!! Too awesome for words to express our excitement!!!!!!

Then our next big wow came on the flight home. Jonathan was actually looking out the window of the airplane and noticing the clouds, the ground below and how close or far it was. It was like he was seeing something totally new. Like when a baby first discovers his hands. Jonathan has never examined anything like this ever before. This reminded us of our other "normal " son the first time he understood what flying was. How intently he examined every little change as we flew. This is so huge to us!!!! We are super excited!!!

Now I guess I will explain what we are going to be doing from Dr. Stewart. Dr. Stewart is always researching ways to help our kids and his latest findings show that our kids Have low Homocysteine levels which is all part of the bodies methylation process. And at the top of the process. So in order for our bodies to make Homocysteine we need 3 things Methyl b-12, Methyl-Folate and P5P. Since our kids don't have good stomach and intestine processes it is very hard for them to absorb this nutrients orally. Also since the whole Methylation process is messed up they can't convert B-12 and Folate into the Methyl kind. So we will be using shots of these 3 compounds to get this into Jonathan. We had tried the Methyl-B-12 shots before with not much result. But if he was low in the Folate and P5P his body couldn't produce the Homocysteine which is the building block for the whole methylation process.
The other missing piece is low Dopamine levels. This is why our kids stim and don't sleep well and a bunch of other issues too. So we will be starting on a product called Neuro-Transmitter Support by Neuro-Biologix to help with the dopamine levels. It should be no more than 4 weeks before we start to notice changes. So I will post again as things happen.